Tuesday, March 27, 2012

Disappointed

I am pretty upset.  Not sure this post will make a lot of sense.  And I am definitely not in the mood to put up in pictures.

Julia had her eye appointment today.  It did not go well.  We had thought we would just get a spare contact, check her prescription and order a new contact.  Our doc put in a spare contact and then started looking at her eye with the lights and the little microscope thing (I really should figure out what those instruments are called).  He commented that her pupil seemed smaller than before.

So he took her to the treatment table and we held her down and really looked at her eye.  He told me he had bad news.

Julia has formed a membrane over her pupil.  If you really look for it you can see it.  The cells around where her lens was removed have regrown over her pupil and are blocking her vision.  He dilated her eye so that she can see a little better - with the pupil bigger she can see more "around" the membrane.

The really bad news - it has to be surgically removed - and soon.  Like day after tomorrow.  They are calling me tomorrow if they can squeeze her into the surgery schedule on Thursday.  If they can't we will keep her eye dilated with drops to help her see until we can get her into surgery.  She will technically be having a membranectomy.  Sounds fun right?

I am so mad and so frustrated and angry and sad and nervous for my baby.  It really feels like we just cannot catch a break.  Do I have a bullseye on my back?

So say some prayers for Julia.  I'll post more later with details - probably after surgery if we are going in on Thursday.

6 comments:

  1. Oh my word! I am so sorry!That is terrible. Praying for you and for Julia! W

    ReplyDelete
  2. Let me know how I can help. Do you need me to take Jed home with me? I am so sorry there wasn't good news. I will pray for you guys.

    ReplyDelete
  3. Oh Laura I am so sorry for you and Julia. Please know I am praying for you and your family. We are here for you... I am sending you a giant HUG through my keyboard, right now.

    ReplyDelete
  4. I am so sorry for you. I will pray for you and Julia (and your family!) Hugs!!!

    ReplyDelete
  5. Elsa had some regrowth too. it is frustrating to have to jump another hurdle. on a positive note it seemed that the procedure was fairly simple. You will be in my prayers.

    ReplyDelete
  6. It's Thursday right now, prayers coming that way. So sorry for this. IT WILL GET BETTER. I don't know how or why or when, but it will.

    ReplyDelete