Sunday, December 15, 2013

Two years

Dec. 15th.  For most people, this date simply means they have 10 more days to shop.  For me, it is a day I will never forget.  Two years ago, on December 15th, I spent 4 hours at Children's Hospital with Julia (and my Dad - Thank you Dad!) and found out that my perfect 8 week old little girl was blind due to a cataract, needed surgery and would wear a contact and patch.  In some ways, it was a glorious day.  I had spent the night worrying that she had cancer or something equally as terrible, so to hear that it was "just" a cataract was a relief.  But it was emotional, and scary, and I will always remember.

This is the day of the appointment.
 
Now that two years have passed and we have adjusted to this EYE world, I can realize that I have so much to be thankful for.  I know that I probably should have done a Thanksgiving post, but I never got around to it.  This two year journey has been wonderful and horrible at the same time.  But I couldn't have done it with the support of so many different people.  So in honor of the two year anniversary of her diagnosis, I wanted to express my thanks.
 
 
My family - Thank you for all your support and prayers.  For keeping Jed overnight so that we could get to early morning surgeries.  I can't count how many times my mom has driven me to appointments with Julia and been my rock when I got bad news.  Thank you for loving Julia so well.  I know I can always count on my family, and for that, I am extremely grateful.
 
 
 
Imoms - I couldn't have done this without you.  That night, I got on the internet, and the reality of what we were facing became real.  I read about patching and contacts and knew that this wasn't going to be easy.  But I connected with you all, and saw my story in your blogs.  Then it was emails and instagram and knowing that I was never alone in this crazy EYE world.  From the depths of my soul, thank you.  I love knowing that out there, somewhere, is another mom that has experienced these emotions.  I remember that and don't feel so alone.
 
 
 
Technology - yes, this is a weird thank you, but I am so grateful for technology.  For the tiny instruments that allowed a surgeon to remove a cataract from an infant.  For the contacts and research that helps the doctors know what to do.  I know that even 25 years ago, her outcome could have been much different.
 
 
 
First Steps - I am so thankful for the OT, speech and vision specialist that have helped Julia meet her milestones.  And for the glasses!  First Steps has provided Julia with glasses that would have been very expensive for us to pay for.
 
 

Prayers - I am so thankful for the prayers from my friends, family and church.  My church family has been so accepting of Julia and her patch.  They pray for her and love her and accept her.
 


I know this is a cheesy blog post, but my heart really does swell when I think of how much we have been through in the last two years.

- 4 surgeries (with one more scheduled)
- 4 pairs of glasses (with more than 8 prescription changes)
- countless boxes of patches
- 20+ appointments with the Eye Clinic
- Thousands of tears
- Millions of smiles, laughs and hugs


Obviously, Julia is no worse for the wear.  She has come through everything like a champ, and I am sure she will continue to tackle any obstacle that comes her way. 


5 comments:

  1. Love, love, love, love, LOVE!!!!


    blogger just deleted my enttire comment....boo

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  2. What I said was:

    Julia is perfect, precious, adorable and AMAZING! I have really enjoyed watching your kids grow up and love being on this EYE journey with you. I actually saw something the other day and I though, Jed would love that! hilarious.

    You are AWESOME! I had much more specific things typed and I am annoyed at blogger. But, know this....Julia will be a better person for this journey. It stinks now, but will somehow be worth it. I just know it....

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  3. It is such a crazy journey- and I agree... our iMom group rocks! Julia is so cute and so blessed to have you as a mom. Your family is beautiful!

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  4. Julia,
    I am just finding your blog and tears are rolling down my face as I read this post. My daughter is 3 months old and was diagnosed with the same issue. We have had one surgery, are doing the contact now, patching every day, etc...I saw myself and our life through this post. I have no idea what I am facing and how to even go about helping my daughter. Your post helped tremendously! I just started our blog the address is livingwithblindfaith.blogspot.com I would love to join the imom network group!

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  5. Can you believe at the 2 year mark you were celebrating it with gratitude!!! Amazing was patience, perseverance and perspective can provide. :) So PROUD of you and Julia.

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